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 Living with Limitations

Copyright 2006
Barbara V. Schochet, Ph.D
All Rights Reserved

 

 Living with Limitations

Limitations, Deprivation and Diabetes

When you are a child, you think when you grow up,  you will be able to do almost anything you want to do. Well, you will have to go to work and/or raise kids, pay taxes, shovel snow if you live in a snowy climate, pay the parking meter.... things like that. But, you think you will be able to eat what you want, when you want it, within some sort of reason, or perhaps with no reason!!!. You think you will be able to exercise or not, as you please. No coaches to impose laps around the track or pushups. When you get your driver's license, you get a taste of adult freedom – and it's wonderful!

Even though adulthood isn't quite as free as most of kids think, it still involves many choices. But, living with diabetes means that you will have to be more disciplined than you thought you would have to be as an adult. You must plan your day carefully, and say "no" to some indulgences along the way. (no doughnuts at work, controlled portions, only a certain amount of fat. You have to eat on schedule, even if you're not hungry – unless you're using an insulin pump).

Limitations and self-discipline have different meanings to different people. Some people don't mind. They are not bothered by self-discipline. Other people hate it. They feel that they are losing something when they have to exercise control over their eating and their schedule. Some feel a loss when they can't eat what everyone else is having. In therapy, we can explore what these things mean. These losses and moments of sadness are important. We want to understand what they are about - for you. Sometimes we may discover deeper meanings that are affecting you.

 Sometimes, just talking about these things will help. Some people  define their freedom differently. (For example- "If I do this, I will have a clear conscience and feel good." "No one gets to eat all the junk they want – if they do, they wind up sick early in life, or very obese, or both.") For others, particularly those who have had lives with a lot of deprivation (whether it was physical or emotional deprivation), the struggle may be a difficult one. However, they will be dealing with it actively in therapy, and not building up resentment that may boomerang into poor eating habits.

Sometimes, these issues about deprivation and limitations bring up really important life issues. In what areas of your life do you feel free to express yourself? Is food the only way you can express yourself? What is important to you in life? Are you on a track that is where you want to be?  This can become a rich subject for therapy exploration. .

 

Deprivation – what's it about?

Many people with diabetes feel deprived from time to time. Diabetes takes away the instant, simple, cheap pleasure of junky, rich fatty foods. Taking good care of yourself when you have diabetes means saying "no" to indulging yourself cheaply and quickly. Indulging yourself may need to be redefined to include taking a nap, getting a manicure, or taking a class in woodworking. Once, when I spoke to a group at USC, a very bright woman said that she realized she needed more sensual pleasures. Now she uses incense, candles and other smells to enhance her living environment.

Sometimes, when people experience feelings of deprivation, they are affected by things that also happened to them when they were young. Sometimes they grew up with a lot of emotional or material deprivation, or both. They have less of a "reservoir" to deal with feelings of deprivation, then, when they are older.  

Diabetes can be a "wake up call" to figure out your life priorities and make them primary. If you are feeling too deprived to be able to follow through on a diabetes routine, you may want to get some help with those feelings of deprivation.

THE MEDICAL SCENE: WANTING TO "SHOOT THE MESSENGER?"

In a famous Shakespeare play, a messenger comes to tell  that ____ is dead. The messenger is slain because of the bad news he delivers.

 

You may be overweight, you may have less than perfect blood sugars, and you may really dislike dealing with the medical system.  It is easy to react to your nurse, dietician or doctor as the bad guy. He or she is the one who is telling you that you can't do what you want, right?

Who's taking it away from me? Who's in control?

If you grew up with an angry, scary or belittling parent, or the opposite – a totally indulgent one - you may have what psychologists call "problems with authority figures."  You don't like people pushing you around. You don't like people telling you what to do. It can be tough to have someone telling you what you should be doing, when you  don't like them, or you hate having anyone with authority tell you what to do!

  1. This is a pretty common problem. Sometimes, just being aware that you have this tendency can help.
  2. You can build a more equal relationship with a doctor or nurse by coming in as an active person in your partnership. Bring in your blood sugar records. Have your questions written down.
  3. If you don't like talking with your doctor or nurse, try to figure out why - what gets to you?  Let's say you realize you don't really dislike the nurse, but you hate that she always talks too fast and uses medical terms you don't understand. You can try asking her to slow down. You can ask her, "What's _______?"
  4. You can organize the time with some Diabetes Health Professionals. Tell them what would be helpful for you.:

"What I'm most concerned about today is..."

"I'm having a tough time with high blood sugars later in the evening, and I don't know why."

"I have a couple of questions about my cholesterol."

Let's face it. There ARE moralistic-sounding doctors, nurses and dieticians who act like you're a bad person if you are overweight, if your blood sugars are high, or if you don't exercise.  Sometimes they come across moralistic because they feel helpless and are frightened for you. They have seen complications, and they don't want them to happen to you. They may have always loved sports, and cannot understand what it is like for a person who hates to exercise. They may not understand how difficult it is for a person to stop using food for comfort.

Sometimes, they may be frustrated because they'd like to be more supportive, and sit down and talk with you. They may be under tremendous pressure to see too many patients in a day.  Sometimes they are upset because they have just seen someone who has suffered a complication that could have been prevented with better care. Since health professionals usually go into the field because they want to "help people,"  they may feel helpless and guilty when they see a patient with complications.

A few healthcare professionals think that shaming or scaring a patient will result in better diabetic control. WRONG! While those tactics may work temporarily, they will not work in the long run. Why do they act this way? Sadly, they probably learned this lousy approach from their own parents!

What can you do?

  1. If you have a bad interaction with a doctor or nurse, analyze what happened.  Are they like this all the time, or did the two of you get off "on the wrong foot?"  What if you take their behavior less personally? Your DHP (diabetes health professional) may be stressed, tired, overwhelmed, worried about a sick parent or child, etc.
  2. Be aware that the DHP may represent everything you hate about diabetes – the limits, the fear, etc...or your Mom telling you not to eat so much.
  3. Plan for your visit:
    1. Bring Records
    2. Write down questions and concerns.
    3. Ask for help on a specific problem.
    4. If you have been working more on your diabetes, (e.g., testing more often and writing it down, exercising), tell your DHP. You can even ask for encouragement.
  4. Perhaps your DHP is not aware of how he or she is affecting you. If you have the option of changing doctors, you may want to say, "You seem really frustrated with me. Would you like me to change doctors?" Then, see how they respond – do they soften? Get more irritated? Tell you they were up all night and didn't mean to take it out on you? Sometimes, this sort of feedback will improve a relationship, and sometimes it will tell you that it's time to change.
  5. Try some other health care providers. If you are uncomfortable with your physician, s/he may be aware of your poor relationship and may even be relieved if you find another doctor.

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